11 November, 2009 Wednesday
Everytime before the visit to the oncologist, I will go to NCC 1 or 2 days earlier for blood test and Dr Toh will review the blood test results with me during consultation. The feeling is always like a primary school girl, earnestly waiting for her test results.
The tumor marker has jumped to 284, as expected since I was off the chemo drugs for 2 weeks. So, Dr Toh told me to resume my regime. I told him about my chest seizure and chest pain. Had a X-ray done, but nothing shows up. Well, not sure whether this is good thing or not, but I still do not have answer to explain where I am having chest pain for almost 2 months.
Since the discharge from the hospital stay, my appetite deteriorates, especially during dinner time. Tend to get nausea feeling in the midst of dinner, despite I have taken anti-vomnit medicine. Also, I go to the toilet more frequently for big business. Not daihorrea, but usually in small quantity and it irritates me that I have to wash the wound each time I do big business. Now, I don't even dare to pass wind as I am not sure what would be the output. (Sori, a bit gross to discuss this here. Hope you won't puke out your food)
I am going to Japan again on 21 Nov for my 2nd pilgrimage, bringing my gal along. I was thinking very hard if I should go for H1N1 vaccination jap. No doctor can answer my questions, as this is a new drug and there is not enough information on the possible side effects or consequences to cancer patients who are still on treatment. Really troubled. Don't know what to do.
NCC has finally caught up that I stayed in the private ward (4 bedder) for all my hospital stays, so now I am being classified as non-subsidised patient. The savings foregone will be gst on the invoices, 50% on lab test and higher consultancy fees. I asked the doctor what can be done. He said I would need to see a medical social worker. I think forget about about it, since there is not much savings in the first place and the heavy costs are the chemo drugs and counter drugs which are not subsidised anyway. So friends, one day I may raise a fund raising exercise to fund my treatment, since I will be on half pay from next month onwards. Ha! Ha!
Tuesday, November 10, 2009
Sunday, November 1, 2009
"Hotel stay"
1 November 2009, Sunday
I was just discharged from SGH today. Was admitted on Wednesday when I had appointment to see my surgeon and he told me that I need to go under the table again for the same problem. He gave me some medical jargon "FIA" which I have no time to research. He said that if I don't it earlier, the infection would get worse. After having the previous experience, I agreed on the spot.
I have been having discharge from the wound since my last hospital stay in late Aug. In mid October, the infection flare up and I went to see GP. It only solved the problem temporarily for about 1 week and the infection flare up again. The night before, there was even blood discharge. So, no choice, had to do another surgery again. The surgeon said that this problem is quite common. So pray hard that if you have a pus, don't have it next to anus. It has a lot of after "operation" problem.
My mother-in-law calls my hospital stay as hotel stay. Not very pleasant to spend birthday in the hospital. Also, in the midnight of Friday, I was running a fever. The nurse only gave me sponge and cold pack and never gave me panadol that I asked for. Only after the doctors' visit and I told him about it, then I get my panadol. . My eldest sister was very nice. She was almost approaching her workplace and then u-turn back to come to the hospital to accompany me, after hearing that I tear on the phone. The pain was unbearable in the morning at first, with heavy head and fever and nurses not attending to your request plus late breakfast. Everything just seems not right. I only felt more comfortable to see my sister and she bought fish porridge for me for lunch. The hospital food was really lousy that day too! A few friends wanted to visit me and I had to sms to cancel it. Really in super lousy mood.Was drowsy on almost the whole day of Friday and only recover in the night. My hubby visisted at night after work and came with a fruit cake from Bengawan to celebrate my birthday. This brings little cheers to me, coupled with the flowers that I received from my relatives and the fruit basket from the office.
The wound is still quite raw now. I have to monitot it closely. If there is a lot of discharge or blood from the wound or fever returns, I will need to go back to SGH again. Fingers crossed.
One good news that I almost forgot. My tumour marker has dropped to record low of 142! Protein level has also inched up after I pumped protein powder daily. But because of the surgery, the oncologist asked me to stay off from my chemo drugs for 2 weeks. I really hope that the tumour marker will not jump up 200 points like the last time. Will pray very hard for it.
I was just discharged from SGH today. Was admitted on Wednesday when I had appointment to see my surgeon and he told me that I need to go under the table again for the same problem. He gave me some medical jargon "FIA" which I have no time to research. He said that if I don't it earlier, the infection would get worse. After having the previous experience, I agreed on the spot.
I have been having discharge from the wound since my last hospital stay in late Aug. In mid October, the infection flare up and I went to see GP. It only solved the problem temporarily for about 1 week and the infection flare up again. The night before, there was even blood discharge. So, no choice, had to do another surgery again. The surgeon said that this problem is quite common. So pray hard that if you have a pus, don't have it next to anus. It has a lot of after "operation" problem.
My mother-in-law calls my hospital stay as hotel stay. Not very pleasant to spend birthday in the hospital. Also, in the midnight of Friday, I was running a fever. The nurse only gave me sponge and cold pack and never gave me panadol that I asked for. Only after the doctors' visit and I told him about it, then I get my panadol. . My eldest sister was very nice. She was almost approaching her workplace and then u-turn back to come to the hospital to accompany me, after hearing that I tear on the phone. The pain was unbearable in the morning at first, with heavy head and fever and nurses not attending to your request plus late breakfast. Everything just seems not right. I only felt more comfortable to see my sister and she bought fish porridge for me for lunch. The hospital food was really lousy that day too! A few friends wanted to visit me and I had to sms to cancel it. Really in super lousy mood.Was drowsy on almost the whole day of Friday and only recover in the night. My hubby visisted at night after work and came with a fruit cake from Bengawan to celebrate my birthday. This brings little cheers to me, coupled with the flowers that I received from my relatives and the fruit basket from the office.
The wound is still quite raw now. I have to monitot it closely. If there is a lot of discharge or blood from the wound or fever returns, I will need to go back to SGH again. Fingers crossed.
One good news that I almost forgot. My tumour marker has dropped to record low of 142! Protein level has also inched up after I pumped protein powder daily. But because of the surgery, the oncologist asked me to stay off from my chemo drugs for 2 weeks. I really hope that the tumour marker will not jump up 200 points like the last time. Will pray very hard for it.
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